Monday, April 30, 2012

Living with a disability

Well the recovery never really happened. I have not given up hope, but I am not waiting around for it. I have been left with what I estimate to be about 50-60% of my previous functionality and energy levels. If i step outside my 'energy envelope' - I do too much exercise, work, stay up too late, stand too long, walk too much, socialise too much, - then I pay the price the next day and sometimes have to spend an entire day in bed. I have not got very good at 'pacing' myself as I have only really just come to terms with the idea that I am not going to recover in the immediate future, and I have been dealing with the grief and denial that goes with that for some time. But I'm working through that and the good project manager that I am, I am sure I will get together a program to try and optimise the resources I have left. The first thing I need to get on top of is my night time schedule. I get into a bit of pain, zone out with TV or computer or both and don't go to bed until late and so feel like I need to sleep in the next day. I sound like a petulant teenager really. Well, I need to set a reasonable curfew for myself, and some routines for getting off to sleep.